Shared Trouble

I wrote this flash non-fiction a while ago about a blizzard that happened in Chicago in 2011. I’ve been thinking about it a great deal as the whole world prepares to shut down to stem a pandemic and stares down what it is like to be locked away from other people for extended periods of time. My chronically ill friends already know what it is to be isolated at home when no one healthy seems to realize that this is how we’ve already been living. 

Shared Trouble
At least two inches of snow packed against the side of a picket fence, giving the impression of soldiers in formation facing a formidable foe together.

I had enough bottled water and milk, Goldfish crackers and juice boxes, diapers and wipes for at least a week, if not two. I had enough packages of chicken and ground beef and pork chops and hot dogs in the freezer to make dinners for seven nights. Cans of soups and beans and bags of rice in the pantry. If the power went out I had industrial size jars of peanut butter and jelly and several loafs of bread, individual cups of applesauce, mandarin oranges.

In the house I had an extensive first aid kit, wraps and splints, thermometers and burn cream. I had backup ibuprofen for children and adults. All the flashlights had batteries. Extra batteries. Chargers.

We had our DVD collection if the cable went out but the electricity didn’t, board games, the blue cube cloth bin of Hot Wheels cars and the entire cabinet full of Hot Wheels tracks, the bookcase full of stories to read aloud. If the wind howled too violently, we had the old couch cushions we used to pad the tile floor of the laundry room during tornado warnings. We had a thick pile of blankets and footsie pajamas.

Everyone called the day before the blizzard asking if I was ready. If we had fuel for the snowblower (always), a full tank of gas in the car (yes), water and food and emergency supplies (I do). In every conversation my parents, my in-laws, my brother, my brother-in-law warned me that the crowds were hectic at the grocery store or the lines were long at the gas station and I verbally shrugged that I didn’t need anything. They got confused. I was confused at their confusion until it crystallized-they didn’t know this was how I always had to live.

At this point it had been four years that my husband had been traveling for work almost every week. It had been two years of being a mom to two small boys, and the only caregiver 24 hours a day for three or four day stretches. It had been one year since the pain started that wouldn’t go away and didn’t then have a name. I was always prepared for multiple days of isolation with a four-year-old and a toddler. We weren’t always trapped, but we were too often trapped by my sudden, changeable and unpredictable limitations. The week of this blizzard, my husband had left before the forecast showed what was coming, and flights weren’t returning through white out conditions. It was just the three of us, as it often was.

My family misunderstood what sort of help I might need because I’d adjusted to my new reality when they weren’t looking. Cold had started to make my muscles crack under the strain, light dazzling off snow might send me into migraines. The room could spin or my limbs would get heavy or my hands would cramp too hard for me to hold a potato I was supposed to peel for dinner. Our home was well-stocked and prepared because I needed to care for two little people when my body would sporadically make it nearly impossible to leave.

I spent the night of the storm awake and alone, bolt upright in bed feeling the air in the room vibrate with energy as the windows shook in the wind, and watching the lights flicker out but eventually hold. Lightning began, but instead of brilliant and shining, the light was gauzy and diffused through the snow. Thunder rumbled loudly enough to keep me vigilant and alert, but quietly enough that the boys stayed asleep in their beds. I could have used my babies snuggled up against me, light snores giving me white noise and the weight of their arms draped on mine, keeping me from clutching a phone in one hand and a flashlight in the other. I could have used the solidness of their needs to keep me from worrying what if, what if, what if. But they weren’t and this night passed like so many others by myself-watchful waiting to see if a problem cascaded into an emergency that meant I needed to call for help. How many nights had I spent alone waiting to see if a pain became unbearable, if a blinding crack of a violent headache meant I needed to call 911, if a weight pressed on my chest was my heart failing? How many mornings had I woken up worse for a horrible night but still alive, tasked with making our little life at home happy? How many times had I quietly panicked and never told anyone?

By the time the streets were halfway plowed, family came to dig us out. I happily made hot cocoa for our guests. It was nice to have company.

Something a blizzard can do, because it’s large and dramatic and a shared trouble, is bring people who might understand how to help to your doorstep.

My illnesses, small against the scale of the world, invisible because I could almost cope, and almost untranslatably personal, often didn’t.

Fangirling

My kids didn’t know about this website until last night, and I don’t know how that’s possible!?!

 

My oldest kid said, “This will sound goofy, but I didn’t know blogs were on websites.”

 

My youngest said, “I thought websites were like these fancy, hard-to-get things.”

 

I had to explain that websites aren’t super hard to get, and that yes a blog is usually on a website, and that I’ve had this one for five years now and like how did you not know???

 

They explained that I don’t often explain the ins and outs of writing and publishing except to let them know when I submit a story about them (we read it and I ask if they feel comfortable with it or not, and if they don’t I don’t) and to tell them when an essay goes live and occasionally they see me a bit bummed when I get a rejection. My oldest will ask me how my day was and nod approvingly when I mention that I got a lot of words down, or did revisions, or handled submissions, or found a new literary magazine to submit to, or went mildly viral on Twitter for something mildly embarrassing. But they didn’t know this website here existed.

 

We Googled pictures of ourselves. They don’t have any online easily attached to their names yet (no social media accounts so far) so it’s funny to see their alternate lives as a cross-country runner from Minnesota or model and photographer in Paris. When I look up “Kristin Wagner” there are sooooooooooo many women who are not me. Gynecologists and real estate brokers and what not. I didn’t think about how common my married name was until the last couple of years. I shifted the name of this site to kristindemarcowagner.com and when I look up “Kristin DeMarco Wagner” it’s all undoubtedly me. Most of the pictures are from here or Twitter or Instagram. Showing the boys that Google search led to their realization that I have a website, and my astonishment that they were clueless about it.

 

But also!!!

The Google image search led me to an article I had assumed hadn’t happened because I missed when it did come out. Editors from The Kitchn had asked fans of Samin Nosrat’s book Salt Fat Acid Heat to share what they loved about the book. I jumped at the chance to fangirl over it a bit, because I absolutely adore the cookbook and the Netflix series and have prints of the illustrations for it in my kitchen. And the Google image search last night led me to 8 Cooks on Why Salt Fat Acid Heat is Such a Special, Unlikely Hit and I am in there as one of the cooks! A home cook, absolutely. A home cook who made Rachel Ray Sloppy Joes and tater tots last night. A home cook who has two kids who, when I exclaimed “Oh, I love when I get to do even a little food writing!”, said to me confused “You don’t do food writing”. I told them that maybe they don’t know everything I write while they’re at school for 6 and a half hours a day, since they didn’t even know I had a website for my blog posts. And then I defrosted another gluten-free bun in the microwave so that my youngest could have seconds and we talked about school.

Salt Fat Acid Heat.jpg
Some of my cookbook shelves, with Salt, Fat, Acid, Heat displayed

 

And perhaps that’s what I love about Salt Fat Acid Heat so much is that it is a cookbook that is detailed and specific and techy, but also incredibly accessible. It lives and breathes with people who are just working on making everyday meals with people we love more enjoyable as much as it resonates with really accomplished and finessed world class chefs. So last night was neat. The link to the article is embedded in the title of the article above.

 

Talk to you all later!

Kristin

 

P.S. A quick note about the sloppy joes-I added seasoning to the meat at a different time because of Samin. I added a splash more vinegar because of Samin. I cooked the meat and vegetables differently because of Samin. Every simple meal is just tweaked a little bit for the better, even on a really ordinary night.

 

Buried Treasure with Frame
An illustration from Salt, Fat, Acid, Heat that’s on my kitchen wall called “Buried Treasure” featuring radishes and beets

Revisions

It’s been a bit, huh? Well, hi! Hope you’ve been doing well in the interim.

 

Way back at the beginning of 2019 I finally had a completed manuscript for my book. An essay collection about chronic illness, and being neurodivergent, and about being a disabled mom, and about disability advocacy and representation. I had arranged parts by theme or topic and my reasoning for doing so was that illness/disability is ongoing and chronic and there was no diagnosis-treatment-cure narrative arc for my life. When I began writing about all of this that was the case-I was collecting more symptoms with no end in sight and had basically felt that people didn’t really understand what my parallel existence looked like-so I would show them.

 

Except…halfway through writing the essay-chapters I did get a diagnosis (Lyme and Babesia) and did undergo treatment that helped. So I was complicating things unnecessarily by intentionally NOT putting the book in chronological order. A huge overhaul was underway-rearranging, adding chapters to fill in details, revising what was there to make more sense, splitting up the appendix of medical conditions. With this version fairly well in hand I queried and well…

 

I got back really useful feedback that rang true as soon as I heard it.

It was too much. Too scattered across ideas and styles and conditions. Too scattered in themes and tone and too much detail. This isn’t verbatim at all, so we’re clear. The way the stories came out of my experience and my brain wasn’t the way it was the most easily or most enjoyably understood by a reader. There was a disconnect between what I thought I could give and what was most appreciated in a gift.

 

It rang true, but I didn’t want it to because I wasn’t sure I could tell a story straight. Each time I have tried to revise something in the past that was too much into something that was more digestible and normal I have not been able to. I lose something, and my new revised version isn’t quite right. It’s a B or B+ at best, when there are other people nearby doing consistent A work. Fear of another revision was the fear I’ve had so much of my life that when I try to do what neurotypical people do, I only do it-at best- 80% as well as they can. Which is not quite enough. It is nothing to be ashamed of, but it is often close without being right-and that can hurt more than a straight up swing and a miss.

 

So I thought about it. A lot. A lot, a lot. I went back and forth so many times trying to figure out what to do. One the things I did was to consider the Chihuly museum-somewhere we visited right after I got this feedback. His glasswork is vibrant and riotous and often odd, and I was saturated with the texture of one piece, the inner shine of another, the contrast of colors on another. There was so much to look at, to take in, to notice. This is what the inside of my brain often feels like; it was like an external representation of what I loved and celebrated and wanted to share. As I began to feel overwhelmed by it all I noticed something that was, in retrospect, so obvious I feel silly. Each art installation had boundaries.

It may be that all the pieces in a chandelier are the same color.

green chandelier
A green glass chandelier with many glass bubbles

 

It might be a room of vases in a similar shape but all different colors.

vases
Huge wavy glass vases, in firey magenta orange, blue, yellow, green

 

It might be a room that is a fantastical representation of a real life setting.

under the sea
glass sculptures in reds and yellows and blues and greens mimicking under the sea

 

It might be boats literally holding and containing variations on a theme.

Boats
A black background and two rowboats, one filled with colorful glass globes and the other with abstract flowers and bulbs

 

Those boats have been a visual guide for revising my book yet again. The one on the left has so many beautiful individual pieces-that are all spheres. The right has so many beautiful individual pieces-that are all botanical. The boundaries are what keep all of the thousands of pieces from being a jumbled overwhelming overstimulating experience. This art wasn’t straightforward portraiture, or sculpture. It was whimsical and weird, but impactful because of a few well-formed conventions. I felt like maybe I could do it. My essays could be contained in different boats. The simple idea that I could have more than one boat was a revelation! I didn’t think that would ever be allowed! Maybe I thought everything had to be thrown into the world at once because I wouldn’t live long enough to have time to do so-or maybe that I wouldn’t be given enough opportunities if I messed up the first one. Better to cram everything in at once, I think I thought. But this was showing me I didn’t have to.

 

I’d like to say I decided right then and there that I knew it was right to revise, but I didn’t. I was still scared and didn’t know if I had the skills to shape the whole thing again-limiting the narrative scope and turning brief bits of stories into an arc. Someone else (the fabulous Captain Awkward) gave me many tools to help decide what was right-one of them was assigning music to different chapters and see how they sounded together. Were they discordant? Was the tone smoothly shaped along the way or were styles jarring against each other? Was the mood of the music what I had hoped to accomplish? And in doing this exercise I realized both that no, my book wasn’t yet a playlist that made sense, and that yes, I do have some sense of what is conventionally “correct” and even maybe beautiful. The revision felt both like something that could be done successfully and that I could do successfully.

 

So August, September and October were spent revising, taking thirty thousand words out of an eighty thousand word manuscript and making them the basis for something new. I am proud of it, whatever else may come. I am proud of learning what I’ve learned about myself and my craft from doing this. The learning never, ever ends. But I haven’t had much time to write much else-not here. My submissions for individual essays have slowed down. I haven’t been published this calendar year, which is kind of painful in the way that jealousy stabs your heart and the industry wants to make sure you have a public presence as much as possible before they bet on you. But I haven’t stopped writing. And a lot of it, I think, turned out good. I’m happy.

Places I Have Written

IMG_6796.jpg
A view of the neighborhood pool from my vantage point, my colorful skirt and black sandals in the foreground

 

By the side of the pool while the kids had swim lessons. If we got there ten minutes early and it took five minutes to slather on the sunscreen and five to stake out a spot in the shade and fire up the lap top I could usually get 40 minutes of writing in a go. 40 minutes a day, for two weeks straight, Monday through Friday.

 

In the lobby of the rec center, both before it was refurnished and it had a sickly green glow and after when it had attractive splashes of green on the walls. The boys are learning how to play chess once a week in the deepest darkest parts of winter.

 

At a local Buona Beef where I holed up in the covered patio section that is too cold in winter and not as well-ventilated in summer and so fewer people mind if I take up a table for an hour. I try not to drip ketchup on my notes or phone or laptop but keep eating fries as I type, licking salt off my fingers as I pause to think.

 

At soccer practice where I can only take my laptop out on days that are so overcast there isn’t a glare on the screen but it also isn’t so cold that I need gloves. There are no trees for shade, just an open windswept field.

 

In the school parking lot. I would on the coldest days or the rainiest get to the lot before it was closed to busses, a half-hour to forty-five minutes early. I would push the front seat all the way back, put a sweatshirt on my lap to raise the computer up and type until the last bell was three minutes away, hit save quickly and rest it on the passenger side seat.

 

At the pond, while the boys fished with Greg and I found a shady spot. The grass tickled my bare legs and I would stop only when an ant traipsed across my thigh, or a neighbor passed by or a bluegill was caught.

 

In the hallway at basketball practice where my youngest and I would escape the squeak and frenetic pace of the team doing passes and jump shots and layups. We would make a nest of coats to support our backs.

 

In the backyard when I needed to keep an eye on water fights.

 

On the couch with one eye on the TV as the boys shared their favorite Wild Kratts episodes with me.

 

In bed, a feverish kid napping next to me, reaching out a hand every so often in his sleep to reassure himself that I hadn’t gone anywhere.

 

At the doctor’s waiting room, a fifteen minute stretch ahead of an appointment.

 

In the notes app of my phone in the sauna at the gym.

 

At a baker’s rack converted into a desk set in the corner of our living room.

 

At a card table next to our Christmas tree.

 

On the other side of the tempered glass between the gymnastics equipment and the rows of chairs where the parents could watch. One class, instead of writing I had a conversation about writing. A ninety-year-old great grandmother who was visiting with family for a day asked if I was a writer, because she was too. Her attention fell away from her preschool-aged great granddaughter and to me as she glowingly told me about her career as a journalist and later a producer. And how she had never received a single rejection, not once, not ever, until this very year.

 

At a library table on the quiet floor, situated between architecture books and books written in Japanese.

 

At my own desk, in my own home office, during school hours.

 

In a notebook, sitting on the curb in a park, a stroller with a napping newborn to my left and a preschooler playing hide and seek with his uncle in the playground to my right.

 

At my own desk, in my own home office, during summer vacation. The boys are old enough to occupy themselves happily for at least an hour, probably more. But the youngest does come up to announce that he can’t find the remote control truck’s remote control, but not to worry myself because it isn’t that important he just wanted to let me know.

 

April Update

My Existence
A selfie on my birthday. Messy long brown hair. Tortiseshell Glasses. Blue t-shirt that says “My existence is resistance”

I took a little writing break for about a month to take care of…lots of things. I know I haven’t written here for a bit. It’s taken me until today to change the header for this website from winter to spring! Which, to be fair, keeps bouncing back and forth. The week before Easter we had six inches of snow. On Easter it was 70 degrees out. My birthday this last Thursday was gorgeous and sunny, and then five inches of snow on Saturday collapsed our outdoor canopy. Bolts sheared off, metal twisted. It is a pile a scrap metal now. The weather is erratic and doesn’t help anyone feel more stable, that’s for sure.

Anyhow…Since I wrote here last I have been writing a bunch. It’s just in forms I can’t share yet. I 100% finished the manuscript for my essay collection in January/February. Then I completely restructured its order and added in a few essays that I had planned to include in the book from the very beginning, but somehow had forgotten to write. At the same time I was polishing pitches for #PitMad and #DVpit on Twitter, drafting query letters, finishing a full book proposal, and researching agents. By mid-March I paused on writing to catch up on every other non-writing thing that needed to happen.

In that month my dad had an unexpected hospital stay and surgery, my youngest turned ten, my oldest won a basketball tournament, I turned forty, my husband got to be home for a full week without traveling for the first time this calendar year. We started soccer and finished band and had a spring break and hosted a birthday party and went downtown in a snowstorm and caught my husband up on Avengers so that we can see Endgame next week. There was a science fair and field trip in there, too. There was Babesia treatment that I postponed too long and I started to feel bad again.

A lot can happen in a month. A random goofy tweet went mildly viral, and a more serious thread about disbelieving pain patients got noticed. I printed up pictures for our family albums, but didn’t get them into albums. Downloaded pictures off my phone, but didn’t get the phone replaced yet. Cleaned my office, but didn’t donate the box of donations that sits behind my desk chair. Meant to exercise more, but couldn’t. Watched Beyonce’s Homecoming. Read the Amulet graphic novel series with my kids. Cooked more than I had been, but only 1/10th of what I wanted to.

Life is busy and full and chaotic and I thought, somehow, that by doing a bit less in one area, that would be enough to patch up all the holes in all the other areas of life.

It is not.

A month of doing a little less in one area didn’t leave me refreshed, and it didn’t magically give me time and energy to figure out how to manage everything better. It just made me realize that I have been running at full speed for so long that I accepted it as normal and what should be happening. It also made me realize that writing was one of the few things that gave me an emotional and creative outlet and a place to process my thoughts-it isn’t enough, but without it living my life is harder. So, kind of like exercise, it takes times and energy that seems to be in short supply but I have to factor it back into a regular routine.

So back to it. Back to writing (some here, some elsewhere) and back to exercise.

I’m gonna post this, eat, exercise, stare into space trying to remember the to-do list I keep forgetting and try to keep moving.

How I Spent 2018

Sideways Teal
A selfie where I am lying down and the picture is oriented sideways. I am wearing a teal shirt which compliments my green eyes

2018 began with an e-mail letting me know that the results of my Lyme test were in my patient portal.

I wouldn’t have my follow-up appointment with my doctor for another few weeks to let me know what to do about it, but there the results were. Positive. I hadn’t been mentally prepared for it, not really, even though my personal medical intuition-informed by literal years of reading about anything and everything related to my symptoms-had been honed to a sharp blade and I was rarely wrong anymore. I sought out a Lyme Literate doctor because by September of 2017 I was pretty damn sure. I wanted very much to be wrong. No one really believes in Lyme as a chronic illness. Tests are not the most accurate. The treatment is often not covered by insurance and treatment is physically hard on your body. The science is not 100% there…yet. And if I gave myself over to a treatment that amounted to nothing more than potentially hazardous snake oil? My credibility as the expert on my own body and competent caretaker of it would be shot through with doubt. I was not sure I would trust myself again if this went wrong, nor was I sure that other people would or could or should trust me on matters of my own illness. That was excruciating.

My husband and I talked about it a great deal. We talked with other people who had personally gone through diagnosis and treatment and had good results. I had a doctor who was insistent from the start that we would never overwhelm my body with more medication or supplements than I could take, that this was never going to be a miracle cure-I would always still have Lyme, it would just be an infection that was appropriately kept in check, that I had final say over what course of treatment I consented to-and that she would never pressure me into consenting to something I was wary of, that the goal was to get the infection (actually infections, as I have Babesia as well) in check and get me off of antibiotics and supplements sooner rather than later.

Do you know what it means for you to have faith in a doctor when so many failed to help you? There was only one doctor who was outrightly belligerent to me when I desperately needed help. Most of my overwhelming disappointment with doctors was that I would have a life-altering symptom, we would run the standard tests to see what the matter was, and when I walked away I would have a few negative tests results and a shrug. No information about how to control my symptoms. No clues as to what went wrong in the first place. Just shrugs. Doctors only spend every waking second trying to solve a mysterious diagnosis on TV shows. Most of my doctors were well-meaning but overworked, experts in difficult and widely known diseases I didn’t have that occupied most of their research time, and specialists who are dealing with different body symptoms who rarely consider that pelvic pain and hypoglycemia and hives and plantar fasciitis could possibly belong to the same systemic problem. I never gave myself over to unquestioning faith in my doctor, but I began to let myself have some faith in her.

I started treatment in late January 2018. I want to say I tapered off of the majority of my supplements and medicines by mid-March. The whole of February I spent the first half of every day in a haze, a fog so thick I mostly ate and sat and slept. I would take the kids to school, then take my medicine, then deal with the fog. By early afternoon it would lift. I would get the kids, complete the few tasks we needed completed to keep our world running and rest again. I recently looked back at pictures where I didn’t hide behind make-up. I looked grey. My face and lips and eyes looked like the color was drained away. I wore my softest clothes and binge-watched a lot of TV, something I’ve never really done being normally just a bit too restless for that. When I stopped the bulk of the serious medication, I kept on with maintenance supplements for a while. Many of my most problematic symptoms had faded away. Slowly I began working back up to my normal life (and my oldest broke an ankle just a few weeks after I stopped the bigger part of my treatment, so normal life wasn’t normal until about June). I still looked grey in early May. By one each afternoon I would fall into a dead sleep.

By July I realized that I passed out nearly in a dead faint after eating gluten at lunch, shaking with sudden chills, unable to stand upright. There is more to the story than that, but I’ve mostly told that story in an earlier blog post. Since August my youngest and I have been gluten-free. And my immune system seemed to come back on line. It sent my body for a loop. Suddenly immune-regulating medication I was on was dosed too high, and hormone replacement therapy I was on was dosed too high and I had skull-crushing headache verging on migraines for weeks at a time until I finally got the appropriate doses figured out just these last couple of weeks.

And I feel…good.

More often than not, I feel good.

I had given up on that ever being possible.

One thing that most helped me realize that I could trust that going into treatment was going to be the right thing to do? It’s that I had done a lot of work over the last several years to work through the grief of being sick and I had come to accept that my life-my smaller, less capable life-was absolutely still a valuable one. I really had accepted that feeling good might never be a possibility again, and I had made some amount of peace with that. But my heart-my heart was struggling to beat as quickly as it should have been. My heart was slowing down to dangerous levels. I had decided both that my disabled ill life was worth living and that it was in danger that needed to be addressed.

Lyme can infect your heart.

I wasn’t looking for a miracle cure, one that would let me climb Everest once treatment was done. I wasn’t in a desperate place grasping at straws, clinging to gold-plated hollow promises that I could be “fixed”.

I was looking to stay alive, because I loved the life I had in the middle of illness.

It was in that place where a leap of faith was possible and as measured as a leap can be. I knew what cardiologist I was going to approach if my heart rate didn’t recover or got even a little bit worse. I had an EKG through the local hospital that told me that my heart was strong but slow for some (to them) unknown reason. Now, about a year later, my heart rate stays within normal ranges for a person of my activity level. My heart is now beating in a way that makes it more likely that I’ll survive the next year, and the next.

This has been my 2018. I’ve done a million other things in the meantime, but from beginning to end it has been a year where I listened, figuratively and literally, to my heart. There were risks where I gained rewards I literally didn’t think were possible a year ago. There were risks that could have made this coming year a one of recovery from very bad failure. This isn’t prescriptive. If you don’t need to jump, maybe don’t? That leap can be very dangerous. Whatever your leap of faith is about, if you’re thinking about that leap, don’t go about it willy-nilly. Don’t jump with your eyes closed. Weigh everything. Research, examine your mental state, your motives, don’t jump out of a plane without checking your equipment five hundred times. Have contingency plans, and be cautious. But, if you’ve done all those things and you still find that the risk-whatever that may be- is worth it, I certainly can’t tell you to always play it perfectly safe. I didn’t. For once that worked out better than I dared hope.

Happy 2019 Everyone

 

Love,

Kristin

Happy Holidays 2018

I want to start with a brief apology. I haven’t been here on my website blogging in a real way for a while. It’s become a place where I shoot off a brief update every one or two months, and maybe you’re curious about what’s going on with me, but this isn’t maybe what you signed up for. I honestly am hoping that with the new year I’ll have a bit more time for the sorts of posts I want to do: mini-essays. I’m not there quite yet. Let me quickly explain why.

My essay collection/memoir about living with chronic illnesses is nearly complete! I have a few more chapters that need to be begun from scratch, and about ten that need minor revisions, and one that needs a complete overhaul. But, I will most likely be 100% complete (just a touch over 80,000 words) before Christmas. The next step in the new year will be sending it to beta readers (people who aren’t close to the manuscript who give you notes), querying agents (an agent is really important for traditional publishing) and completing a book proposal (some agents request book proposals-something you usually write before you write a non-fiction book outlining what it will be about). My daily writing time will be mostly spreadsheets and paperwork at that point, as you set your hook and see if you get a bite. Writing is a long process, and from what I understand of it, publishing is a long process.

This weekend I used some of Greg’s hotel points to stay in a room in town for 24 hours, writing as much as I could in that time-frame. In all I wrote 3,112 new words (over four new essays), revised seven essay/chapters successfully and revised one unsuccessfully. Not bad. I did have to take quite a few breaks before I felt sick. Luckily the lobby was nice and had excellent people watching.

Fancy hotel
Image Description: My feet, in black heeled boots, propped up on a cushion in front of a fire with a shiny steel hood.

There were two galas happening at the hotel (which was fancier than I expected). One was a black tie/sequined evening gown/fur coat affair. The other was for Gigi’s Playhouse, a support organization for children and adults with Down’s Syndrome. I met teachers who work for the org in jeans and t-shirts in the elevator, wine glasses in hand, heading up to their rooms to change into the dresses they bought for the night. The teachers were my people-a lot less pretentious than the tuxedos and a lot more fun. There was also some sort of pyramid scheme sounding seminar happening that weekend-and I steered clear of that altogether.

And with all the normal bric-a-brac of life-like colds and lessons and clubs and groceries-it is of course the holidays again. Otherwise known as the time of year I fall in love with food writing again. I devoured the latest Bon Appetit and want so much to spend all day tracking down recipes and watching Food Network and writing about food traditions and finding a fun new recipe to try out. Last year it was the NY Times cranberry curd tart (which a good friend of mine had made, unbeknownst to me, as well) which was lovely, but time-consuming, and the hazelnut crust made my allergies flare. We host Thanksgiving (I think I mention that every year-I swear one day when I can’t host I won’t know what to do with myself late November) and this year we’re hosting Greg’s family for Christmas day. There is shopping and cooking and concerts and a whole bunch of other stuff to accomplish.

Bon Appetit
Image Description: The cover of the Thanksgiving Bon Appetit Magazine, with a roasted turkey on the front
Cranberry Curd
Image Description: A sliver of an orange-leafed fall tree and a close-up of a bright pink cranberry curd tart

Then there is my health. So much steadier than other years, however I still am having to tweak medications every week. The ENTIRE time I was writing last weekend, I had a skull-crushing headache. My med dosages were off. Anxiety about not being “productive enough” seemed to have knotted my back, and kept me awake too late and then the next morning too early. It was lovely to have the means to do this (the first overnight trip away from the kids in five years) and to have uninterrupted time-but I was still sick the entire time I was trying to yank a ton of emotional work out of my body. I am sick less often and in more manageable ways than I have been in eight years, but I am still not “healthy”. I have to remind myself of that when I beat myself up over, say, not getting good blog posts out in a while.

But here is an update. I haven’t fallen off the edge of the world, I still exist (though the social media algorithms have abandoned me for not posting as regularly as I used to) and I am keeping busy with things that I hopefully will get to share with you. And I hope to get back to my mini-essays that don’t fit neatly into a book about illness, on whatever I feel like writing about!

 

Happy Holidays, everyone!

Kristin