courage

Adrenaline Nights

~ Kristin DeMarco Wagner ~ 5 Comments

Blood sugar

I am up again in the middle of the night. That makes, I don’t know, twenty or so nights in a row. It’s the hypoglycemia, low blood sugar waking me up for a midnight feeding and sometimes again at four AM. Like having a squalling newborn. The exhaustion in between feedings makes it almost impossible not to pass out immediately, and on those nights I get more sleep. Occasionally adrenaline has done some of the work to raise my blood sugar for me, but then it keeps me up like I had done moonlit espresso shots. Tonight is an adrenaline night. The first few adrenaline nights, when I think about it now, astound me. Each time I had thought I had heard one of my children yelling for me, a loud “MOM”, the kind that accompanies a kid who suddenly realizes he is going to throw up right that second. I would jump out of bed, run to the boy’s room and realize that both of them were one hundred percent sound asleep. It happened once after I knew I was waking up with lows, and I marveled at my brain’s ability to jolt me awake for my own good. Pretty clever, if you ask me, using auditory hallucinations to ensure I didn’t just slip into a coma.

Adrenaline nights wake you up with a jittery, nervous stomach that make anxiety unavoidable. The hours before you are able to sleep again double and redouble the anxiety, and now you suddenly have hours of insomniac time to fill. All by your lonesome. In a spooky, silent and dark house. With access to Google. The first few adrenaline nights were filled with research, scouring reputable medical sites and not so reputable message boards for the answer to the questions, “Why is this happening to me?” and “What can I do to fix this?” Once my bloodshot eyes burned out from the glare of the computer screen, I would refresh them with copious tears the result of other questions, “What if?” and “Why me?” This cycle sometimes lasts four or five hours, before the adrenaline that woke me really leaves me be.

Time can make it better, experience with the adrenaline nights makes it better. I don’t research anymore. I cycle through Facebook, then Pinterest, then Buzzfeed, then Instagram, then the miniature food jewelry pages on Etsy. After those run out it becomes time for an old DVR’d CBS Sunday Morning, My Grandmother’s Ravioli or Treehouse Masters. Absolutely no news, no doom and gloom, no medical jargon, no negativity. It helps.

What also helps is just knowing the moment has come when I am no longer the only one awake in the house. Several times I have been able to fall into a deep peaceful sleep the moment my oldest padded downstairs, said hi and then asked to play on the iPad. Or when my youngest has begun to realize that if he wakes up in the middle of the night I am more likely to be downstairs on the couch than I am in bed, and a few times has snuggled up with me and we’ve both been able to fall back asleep.

I don’t think tonight will work out, though. I have to fast for a blood test, one that might give me answers if only I can stick it out through the night without eating anything before eight in the morning. They asked for ten hours without food, when the longest I have managed in months is six. Adrenaline already woke me up at 12:30, and I have only had two hours of interrupted sleep so far this evening. We will see.

Mothers Always Write

~ Kristin DeMarco Wagner ~ Leave a comment

MAW

Hi everyone!

I have an essay published on Mothers Always Write today called “Muffled”.  It is about my younger son and his struggles with speech delays and with not being able to hear well when he was three.  I would absolutely love for you to visit their website at

http://mothersalwayswrite.com/muffled/

They have many wonderful essays and poems through all the years of being a mom.

Thanks!

Kristin

The Pain of Not Being Able to Communicate

~ Kristin DeMarco Wagner ~ Leave a comment

donut

This is the second installment of my column Pain and Joy.  I plan to continue on with it the first Wednesday of each month, so wish me luck!

Christopher, Nicholas and I sat on the couch, their pointy elbows pressed into my ribs, and their pointy chins digging into each of my shoulders as they tried to crowd in to get a better look.

“How come Christopher is always so cute in pictures, and I’m not?” Nicholas wanted to know.

“Kiddo, this album is from 2011, and you would have been four – that cute kid is you.”

Nicholas looks sheepish and pleased with this realization, but also surprised, “I was so little!”

“Hmmm, yeah guys, this is Christopher,” I point at a picture of a toddler with impossibly chubby cheeks sitting in a red plastic wagon, “He would have been one and a half here.”

Christopher, so mature and lanky at six years old, lets out a squeal over how cute he was, while I notice a pattern to our pictures. “Hey, what’s up with you, here? In every other picture you are completely crabby!” Actually, in three out of four pictures he looks either completely unimpressed with life or, as Thomas the Tank Engine might say, quite cross.

Giggling hard he gasps, “Why was I so angry?”

“I know, right?” I goof with him, flipping pages rapidly, “Cranky, cranky, cranky, happy! Cranky, cranky, cranky…”

When Christopher laughs now his cheeks still get round and full. He’s now laughing so hard that he is slightly out of breath and…

“Happy!”

He lets out a long sigh and wipes his eyes.

I didn’t realize how much of his unhappiness from that age would have come through in those pictures. I do know why he was angry, or rather I can guess. Long past when he should have started, Christopher either couldn’t, or perhaps wouldn’t, talk.

Christopher was, and is, wonderfully adept at reading people’s faces, at discerning the tone of their voices and at understanding the nuances of gestures. As a toddler he could express himself non-verbally almost perfectly. His body language transmitted his mood exactly, and he brought his whole body into sadness or frustration or manipulative charm. He knew to direct your eyes to where he wanted you to look by staring you full in the face, and then directing his gaze at what he wanted. His sighs and squeals and yells were unmistakably clear, but that was it. He didn’t babble. He only had one word by the time he was two.

I knew he was angry that he couldn’t get us to understand what he meant or what he wanted, or more importantly, needed. We would begin a ridiculous guessing game. It was a lightening round of 20 questions, where I would survey the situation, scan my memory for what he would be most likely interested in, and ask a yes or no question. I hoped like hell that I asked the right one before his frustration detonated. If he shook his head “no” too many times steam would practically pour out of his head before he began stomping his feet, and I would frantically try to get it right before he would collapse in a sobbing heap on the floor in utter hopelessness. Or his tantrum would be quieter, with him simply stopping in his tracks, refusing to look up and refusing to walk forward another step.

Christopher began speech therapy after he turned two.

The Halloween he turned two and a half, I had been wondering out loud what his costume should be. I had grown accustomed to making these decisions for him, as he rode quietly in the seat of the shopping cart. I picked up a little faux leather jacket and muttered to myself that he could be a rock star. Christopher paused in what he was thinking about to focus his eyes on me and said very, very clearly, “Dog.”

I was stunned. This was the first time, the absolute first time, he was able to calmly express that my ideas for him were not the ideas he had for himself. Just one word, one syllable; the access to that one word gave him power. That one word gave him the ability to feel secure in his message, to feel secure enough in his ability to be understood that he didn’t have to scream. He didn’t have to cry. I didn’t have to guess, and guess wrong. I blubbered, “Of course you can be a dog! Of course you can be a dog.” He smiled, a very quiet serene smile.

Christopher turned three in April, and the volume of the words he could use had exploded. At his meeting with the school district, the evaluator said that he was no longer delayed, but he could continue with the program for pronunciation help and emotional support. His tantrums were no longer something that dominated our days, though he still didn’t have quite enough words to communicate everything that went through his mind, so they did still happen now and then.

In May, I brought the boys over to my parents’ house to visit and tell my mother that they loved her, now that both of them could. I dropped them off at my in-laws to stay the night, as my father and brothers and I would be helping Mom through open heart surgery the next morning.

When Mom’s surgery was successful, and after she had been in the recovery room for the initial few hours, we were allowed to see her, two at a time, in the ICU. I don’t remember who went first. I know Dad was one of the first two, and then maybe one of my brothers Scott or Matt or Anthony. She was not awake the first time I saw her. The second time I came in I know Matt told me, “She seems happy when you hold her hand.”

So I did, and as I held her left hand I thought about what she might be feeling. Her face was flushed and scrunched and looked distressed. I wondered if she felt anxious about the breathing tube still being in place. I wondered if she was feeling pain from the incision, or if she felt worried about her Parkinson’s meds being off, or if there was a part of her that felt scared or lonely. Then she tried to wriggle her fingers out of my hand. At first I held tighter. She seemed to be trying to break free of my grip, and I chastised myself that perhaps I had been patronizing and she didn’t need my hand.

Confused, I then tried to release my hand, and Mom, with limited motion because of all the equipment attached to her, waved it back and spread it open. She traced something on the palm of my hand, and I looked up at her face with surprise, “Are you trying to write something?”

She blinked her light green eyes so deliberately I knew she was nodding yes.

“H…” I would look down at my hand to make sure that the letter I felt was what the letter actually looked like. I had so many years of practice when she would trace the alphabet on my tiny back and I would proudly tell her that I knew what she was writing. As I said each letter I looked up at her face to confirm I had gotten the letter right.

“O…T. Hot?” I looked up at her and with a softening of the tension in her face she indicated yes. Just one word, one syllable and her power came back. I wrenched myself away from the soft fuzzy imaginings of what she might be feeling, and was able to focus on the practical things that needed doing. My ideas about her were not the ideas she had herself. I played twenty questions with mom, “You feel too hot? It’s really uncomfortable?” Then I would ask the nurse, “Can we remove that blanket? Is this normal to feel so hot?”

By then I know Anthony was in the room with me, and I would call out letters to him so he could help me string them together coherently.

“T…A…P…E”

“The tape is bothering you? The nurse says we have to keep that on, its holding the breathing tube in place, I’m sorry.”

“I…P…O…D”

“Oh yeah, the soothing meditation sounds for afterwards. We’ll get that set up right now.”

“C…A… wait I missed that one, you have to slow down a little because I can’t keep up…H…B? Okay Mom, the nurses need to you to relax for a little while to get deep breaths to get your oxygen levels up.”

When Mom breathed deeply enough, she would fall asleep and her oxygen levels would drop, which meant waking her up again. I explained the situation to her and she wrote in my hand one more time before I was shooed away. I was so tired I couldn’t catch it. “Tell me later, Mom. You can tell me later.”

Later on she told me with a smile, “I’m surprised you didn’t get that one. I was writing ‘Catch 22’ joking about what the nurses wanted me to do with the breathing.” I smiled back at her and apologized for missing it.

The same way I had apologized so often to Christopher, “I’m so sorry I didn’t understand you.”

Night Light

~ Kristin DeMarco Wagner ~ Leave a comment

My audio recording of Night Light

Dusk

Darkness, the way night makes the edges of things indistinct and brownish-grey, is something I experience most often within the walls of my own home. Children who need to go to sleep by 8:30 and a husband who travels nearly every week mean that night is something that descends gently outside our windows. It does not fall on us while we are sitting on a terrace, enjoying the end of a restaurant meal. It does not surround us as we walk down city streets, or hike through woods. Even in the winter, when the sun dips below the hedge-line of our backyard before dinner, cold keeps us in and cozy. Night does not often fall on us somewhere other than our house.

Which is what makes memories of bonfires on freshwater lake beaches stand out as unique, both as a child and as an adult.

I remember being only six or seven when I was encouraged to try roasting my first marshmallow over a bonfire. The small circle of light cast over the grassy sand only reached the feet of the adults who were watching us. They sat back in lawn chairs, their faces obscured by shadows unless they leaned forward to peer at us more closely. I kept darting carefully between the fire and the adults in that circle of sand, amazed that I was holding a stick over fire without grown-up hands holding on as well. My legs were still bare in shorts, but a sweatshirt helped keep the chill off when I would venture further away from the glowing heat.   I asked again and again if the marshmallow was cooked enough because I wanted to do a good job of it, until one patient grown-up who became tired of leaning forward so often to see a still bright-white confection explained that when it was “golden brown” it would be done. I remember nodding my head not really sure what color that was. As I left it in a little longer, and a little closer to actual flames, I got to see it for myself and understood.

With the adults’ faces hidden and their voices hushed I got the first sense that, while they were there if something happened, I was alone to think and discover and learn without them. The glow of this small space in such a large darkness was enough. Even with an entire universe unknown, there was safety being alone in it as long as some light remained.

A few years ago we went to a family reunion on Kentucky Lake, and one of the nights we had a bonfire on the beach.

My older son was only six at the time, and afraid of many things. I saw him come close to the fire, then retreat with his father just feet away from the light. They were swallowed by darkness quickly, and I could hear their voices trip down to the water’s edge and come back. In that short trip, with my son only reassured by my husband’s hand holding his, he accomplished something big I didn’t know he could. He walked through unknown places without fear; he even felt a frog jump onto his foot and didn’t panic. In fact, he was excited to report what adventure had happened in his short absence from my sight.

I stayed in the sand with the littler ones, including my younger son who was four. We stayed a little ways off from the fire, but made our own circle of light with glowsticks. Preschoolers, with parents just out of the cast of pinks and greens and oranges and blues, sat with me and buried their glowsticks in the sand. They retrieved them and would bury them again, checking how far beneath the surface they could plant their treasures before they were completely obscured. They threw them and chased after them, holding so loosely onto the only light they had. Even in the daylight I couldn’t necessarily figure out who belonged to whom, which children went with which adults. I made sure to lean forward so they could see my face and I could see theirs and then tried to let myself feel safe that other adults were circled around us in the darkness. That they were still watching us even if we couldn’t see them as clearly. No one would really be lost in the darkness for long, even if they danced on the edges of it. Though it looked like I was the only one keeping an eye on the children in the circle of light, I wasn’t.

I knew as a child, and as an adult, that a safe presence can still be there even if it is unseen.

What Are You Afraid Of?

~ Kristin DeMarco Wagner ~ Leave a comment

Alien

“There was this incredible crashing noise, like a huge stack of heavy boxes falling over. I went running around the house making sure no one was crushed and never found what it was. Then it happened again that same night. Again, nothing had actually fallen over.” My brother is one of the first people I tell strange phenomena to, because he is the likeliest of all my family and friends to explore all the possibilities with me.

“Whoa. Ghost?” He seems concerned, but practical.

“Maybe a poltergeist?” I actually sound a bit hopeful.

“That doesn’t seem like it would be comforting.”

“But it is!” I can sense my brother raising an eyebrow over the phone, “Poltergeists, well according to Wikipedia, tend to be manifestations of one person’s stress. So, I just need to relax. If it’s a ghost or something then I have no control over bumps in the night. This way, I do!”

“Yeah, still not a comforting thought.”

I would rather have a poltergeist in my house than a ghost. My brother would rather a ghost than a poltergeist. My oldest son, when asked if he was afraid of ghosts one Halloween, furrowed his brow in confusion. “Ghosts are just dead people,” he said. Seeing as he is generally not afraid of live people, this makes sense. But it doesn’t.

Fears are so idiosyncratic. I used to believe that every fear someone had made sense, or had a contextual backstory that explained it away. I am scared of crossing train tracks. I live in the suburbs of Chicago and there are a whole bunch of Metra stations and tracks everywhere. I had heard stories of people dying at crossings. When I was a child in the backseat of a mini-van, I had no control over the speed of our car or when I could cross to safety. When I have had to walk over tracks, I am painfully aware of how slow and clumsy I am.

I am scared of large dogs because for a few summers I worked as a mail carrier. A huge German Shepard that roamed an otherwise empty house day in and day out lunged for me and ripped through a screen next to my head.

I still have nightmares about velociraptors because of Jurassic Park.

These fears make sense.

But I am scared of heights with no clear reason. Arriving late for almost anything starts a low-level anxiety pit in my stomach that can grow quickly to fill my chest cavity. I can swim, but drowning fills my nightmares.

I’ve come to realize that some fears have no clear context, that maybe the quirks of what we fear are largely inborn. Just like our favorite and least favorite foods are decided by a mysterious combination of the chemicals in our brains and the way we’ve been exposed to snacks, maybe our fears work the same way. Some make sense and others don’t.

Take my two sons. They are only two and a half years apart. Almost all of their formative life experiences they have had so far in this world have been together. Raised by the same people, taken on the same vacations, enrolled in the same school, exposed to the same movies and TV shows and video games, they probably have more similarities than differences. But…

The oldest hates rollercoasters, but loves huge water slides.

My youngest loves rollercoasters and HATES water slides.

My oldest is afraid of spiders and heights.

My youngest will be going to a camp this summer mostly to see spiders, and climbs to the top of every playground.

My oldest went water tubing at the age of six and stayed out behind the pontoon boat as long as we would let him.

My youngest, sitting on the boat, absolutely refused. But when he saw teenagers jumping off cliffs into the lake he asked if he could, too. At four.

At the very least it fascinates me to know that for almost every fear we have, rational or not, there is probably a counterpoint. For every fear that has us paralyzed, there is someone who is just amazed or thrilled by it. And the things we take for granted as manageable (I am not afraid of dentists or doctors or public speaking, for example) could be terribly daunting for someone else.

I have always been terrified of the idea that aliens may exist. I want to watch shows about it, but find myself chickening out at the last moment. At any given time there is probably an episode of Ancient Aliens waiting for me in the DVR, biding its time until I am brave enough to conquer it.

My oldest, at eight, has commented on that particular fear of mine.

“I am much more worried that there are no aliens. That will really are alone in the universe. That scares me. We’re the only ones alive in the whole universe? Totally by ourselves?”

I consider this for just a second. “But, what if they are dangerous or evil aliens?” I ask because that is the only possibility I can imagine. “If those are the only creatures who are out there, that doesn’t seem very comforting.”

“But,” he looks at me with that furrowed brow again, “it means someone else is out there. It is.”

Small Changes

~ Kristin DeMarco Wagner ~ Leave a comment

Shoes

I am always amazed by subtle, small changes. Small changes do not openly share all the complexities that led to that moment where something is different but no one can quite tell what. One small change, or the desire to make just one small change, may look invisible. But, the stars that had to align, the consciousness that had to shift, the bravery that had to be called forth is real, though unseen.

There is a woman who exercises the same time I do, here and there, now and again. She has some trouble walking and when I had trouble walking I noticed what brand of shoes she wore. It was helpful information I might need to use sooner rather than later. I made me a bit sad, though, because the shoes were olive green and tan and while they looked flattering on her they are not colors I wanted to have to wear.

She just switched over to fuchsia sneakers. A vibrant happy color. An athletic, as opposed to orthopedic, shoe. A shoe that carried over to the rest of her wardrobe that now included a very pale, but definitely pink, shirt. I kept looking at them, and I could feel her looking at me looking at them and she seemed a little agitated. I never got to explain that I liked them. I hope I get a chance to another day, and that my looking didn’t cause her doubt.

I know for me changing to that bright pink shoe would have entailed so many little steps of courage. There would have been the step to acknowledge that I did indeed want to be a person who struts around in neon colors. There would have been the step to give myself permission to think of myself as athletic, when I cannot run a marathon but I do exercise every day. There would have been the step to convince myself that the expense of the shoe was acceptable from a practical standpoint and from a joyful standpoint. There would have been the step where I mustered the courage to go to the serious athletic shoe department for the first time and asked for help if I needed it. There would have been the step where I put them on in public and was finally okay with being seen as a person who wanted and owned and wore bright pink shoes. A person who might be approached for being bold in this way. A person who might feel like an imposter looking bolder than they feel.

The small shiver of a frown that crossed her face let me know that there was at least one of these moments for her, at least one of these steps to get from the tan and olive shoes to these magenta ones.  There was at least one moment of doubt and one moment of courage that led to this.

I am amazed by small changes, and so happy when I see them.

Lego Destruction

~ Kristin DeMarco Wagner ~ Leave a comment

Legos

Legos can be…tricky.  Like a blank page and all the words in the English language, a bucket full of pieces seems to offer infinite possibilities for creation.  When you get into constructing your vision you start to see all the problems: how two pieces won’t actually fit, or how it doesn’t look how you imagined it or how it could fall apart at any second.  It can be difficult when it looks easy.

My youngest had been working very hard and very frantically at building a spaceship with Legos. Because he wanted it to be something no one had ever dreamed up before, his older brother and I couldn’t help with its architecture. We couldn’t really point out where a wing could be reinforced or where landing gear could sit without being knocked off the first time it “landed”. He had a vision we couldn’t see yet.

I had been casually calling out to the living room, “Hey buddy, dinner’s almost ready,” while getting out dishes and turning off timers. As I brought one thing after another to the kitchen table, I could glimpse him with the Legos on the couch. I could sense him getting angrier and angrier, and I just assumed he was mad at me for interrupting his game. A little annoyed that he was getting annoyed, I tried one last time to get him to the table to eat. “Hey, come on now, you need to come to the table. I gave you fair warning that it was time.” At that he let out an anguished cry and threw his whole spaceship to the ground. It broke, scattering hard-edged colors in every direction.

“What on earth was that?” This is not a destructive kid. Except for one strange week near his fourth birthday, he has never thrown or broken anything.

He screamed back at me, “I couldn’t get it right!” With his eyes scrunched tight and hot tears coming down, I could see him as an adult throwing a thick manuscript into a fire.  A bitter, worn, angry old man willing to call his work garbage because it wasn’t what he wanted it to be.  Destroying every word, every sentence, every page all at once.

When he looked down at what had really become of his spaceship, he saw that not one part could be salvaged.  The horror of what he had done overwhelmed him.  I’ve never seen him sob so hard.

I held him for a while but I couldn’t really calm him down.  I tried to convince him that maybe using the bathroom, eating, resting would help.  Eventually he sat in his own chair in the kitchen, quiet. Even more quietly, he slid out of his chair and into the living room.  He sat on the rug and for the next twenty minutes he rebuilt his spaceship. When he was done he came back to the table and ate his now-cold dinner without a word.  His older brother and I ate silently, watching it unfold.

I’ve heard experts say please, please let your children fail when they are still children. Let them lose a game, mess up a friendship, fall off the playground without intervening so much.  Their lives are going to be filled with problems and they need practice solving them when the stakes aren’t so high. Let them work through difficulty instead of rescuing them. This time, even if I had wanted to, I couldn’t rescue him from his creative frustration and I certainly wasn’t able to comfort him. I got to watch him decide what to do about that demon that told him his creation wasn’t good enough, wasn’t right. He wept over the aftermath of destroying it. He decided on his own that it was imperative to try again.

At bedtime, I told him I was proud of him. One day it might be an entire manuscript that he wants to hurl violently away.  And maybe some memory of this, quiet and still, will make him pause before he can do it.